Happy International Day of Acceptance! As promised, I’m going to answer the readers’ questions about what it’s like to be a young, wheelchair-bound woman, as a way to embrace who I am as well as educating my community of wonderful blogging friends! Still have questions? Ask them now to be included in the second installment [...]
In support of International Day of Acceptance
I’d like to try something different on here. Thursday, January 20 is International Day of Acceptance - a day of social acceptance of disability. You can learn more about the cause on their website and show your support by joining in the facebook event. But this day is also about embracing who you are - [...]
Jerry's Kids
This Labor Day weekend marks the 2010 MDA telethon. In my family, this is a big deal, since my father, brother, and I have Limb-Girdle Muscular Dystrophy. Before my father died, he used a wheelchair for 20+ years. I never saw him walk. Growing up, I didn’t want to be different. I refused to go [...]
Nervous
Today is a pretty intense day for me. Today is my appointment for the cardiology tests to see if my heart is healthy and capable of handling a pregnancy. Since I have a disease that affects the muscles and since my dad died from congestive heart failure, my doctors want to make sure my heart [...]
A Question . . .
If I use my electric wheelchair to go down into town for some fresh air . . . am I going for a “walk?” These are the things they don’t teach you in Crippled Kid 101. Seriously.
Chair Aerobics Review
I recently had the opportunity to review a product that I’ve had my eye on for almost a year: Chair Aerobics. The Chair Aerobics for Everyone Series DVDs offer low impact exercises that are perfect for people who have trouble standing while exercising, have never exercised before, or are just returning to an exercise routine. [...]
Getting "life" back
This Weekend Warrior’s prompt was: How old were you when first diagnosed? I cannot imagine what life was like for my father, growing up in a body that didn’t work right, and no doctor capable of offering a solution. Determined to figure it out, my grandmother drug him from doctor’s office to doctor’s office, searching [...]
Tolerance
I was going to post this earlier in the week, but decided to save it for Weekend Warriors, because it was more appropriate. Weekend Warriors is a weekly MEme for special needs families and is hosted by Adoption of Jane. To the mothers of beautiful special needs children, you are amazing. You struggle and strive [...]
Keep Rollin'
This week has been one for the books. And it’s only Wednesday. Sunday night, my wheelchair started acting funny. I was going down the hallway when it suddenly shut off, giving me a bad case of whiplash and almost (literally) throwing me out of the chair. About thirty minutes later, it completely shut off. I [...]
Weekend Warriors - - - What a nifty idea!
I saw Brittney @ Mommywood post today for a new MEme, hosted by Adoption of Jane This MEme focuses on Special Needs Families. I figured, since most of the posts will be from women with special needs children, it would be neat to give input from an older Special Needs person. My addition to this MEme is [...]
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