What we know so far

Yesterday’s meeting with the genetics counselor was a lot more positive than the cardiologist visit. No panic attacks, no IV’s, no boobs hanging out of a hospital gown. (sorry hubs) Beyond getting a little taste of the sticker-shock from how expensive the whole process is, and learning that it’s possible my insurance won’t cover jack [...]

Nervous

Today is a pretty intense day for me. Today is my appointment for the cardiology tests to see if my heart is healthy and capable of handling a pregnancy. Since I have a disease that affects the muscles and since my dad died from congestive heart failure, my doctors want to make sure my heart [...]

Our long journey begins

There was only one thing on my mind at my yearly Muscular Dystrophy appointment. For the past three years, we’ve asked about it in casual and broad terms. But this time we were prepared with focused questions and the need of a game plan. We started talking about pregnancy. To quote one of MTV’s newest [...]